Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships - Université Rennes 2 Access content directly
Journal Articles Journal of Intellectual and Developmental Disability Year : 2022

Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships

Abstract

Background The increased life expectancy of people with Down syndrome puts pressure on parents, who are usually the main caregivers but who find caring more difficult as they get older. The quality of the support provided by brothers and sisters depends on the intra-family relationships they build when growing up. Methods 121 adult siblings of people with Down syndrome completed a questionnaire on their perceptions of their childhood relationships. Results Brothers’ and sisters’ relationships with a sibling with Down syndrome were mostly (very) positive, but this was not always the case for their relationships with their parents and other siblings. Factors affecting these relationships include respondent’s sex, number of siblings, and sibling position. Conclusions In addition to simple risk and protective factors, we identified parameters that should be taken into account when providing support to siblings and parents of people with Down syndrome.
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Dates and versions

hal-03184719 , version 1 (29-03-2021)

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Lise Lemoine, Benoit Schneider. Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships. Journal of Intellectual and Developmental Disability, 2022, 47 (1), pp.39-52. ⟨10.3109/13668250.2020.1855632⟩. ⟨hal-03184719⟩
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